Comments on: Who and What Drives Autism Research? http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/ Supporting Autistic People Sat, 01 Aug 2009 12:15:23 +0000 http://wordpress.com/ hourly 1 By: Letter to America « Action For Autism http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-8173 Letter to America « Action For Autism Mon, 08 Jan 2007 23:23:59 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-8173 [...] have blogged about the NIMH research programme into autism before . Like most autism research it has a strong medical bias, looking for causes and [...] [...] have blogged about the NIMH research programme into autism before . Like most autism research it has a strong medical bias, looking for causes and [...]

]]> By: Mike Stanton http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-2602 Mike Stanton Tue, 17 Oct 2006 22:31:56 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-2602 Thank you Laura, I agree with you. I support <a>APANA </a>because I do not think you can drug autism out of existence either with alternative or mainstream medicine. I support autism acceptance and oppose any attempts to cure what is essentially a neurological difference. Thank you Laura,
I agree with you. I support APANA because I do not think you can drug autism out of existence either with alternative or mainstream medicine. I support autism acceptance and oppose any attempts to cure what is essentially a neurological difference.

]]> By: Laura http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-2598 Laura Tue, 17 Oct 2006 21:27:59 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-2598 "I would not trust a doctor who is trying out his theories on children before presenting them for peer review" What do you think mainstream neurologists are doing when they prescribe antipsychotics and other psychiatric drugs for the "off-label" use to treat autistic symptoms. They are absolutely treating these kids as experiments not based on any real substantial proof that these pharmalogical drugs help, just review the medical literature, the studies are all over the place..... The entire treatment of autism, whether alternative, mainstream, or research-based is one big fat experiment, no one has a clue... Laura “I would not trust a doctor who is trying out his theories on children before presenting them for peer review”

What do you think mainstream neurologists are doing when they prescribe antipsychotics and other psychiatric drugs for the “off-label” use to treat autistic symptoms. They are absolutely treating these kids as experiments not based on any real substantial proof that these pharmalogical drugs help, just review the medical literature, the studies are all over the place…..

The entire treatment of autism, whether alternative, mainstream, or research-based is one big fat experiment, no one has a clue…

Laura

]]> By: NIMH Chelation Study « Action For Autism http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-2120 NIMH Chelation Study « Action For Autism Sun, 01 Oct 2006 10:06:56 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-2120 [...] Two weeks ago I wrote to Karin Lee at the National Institute for Mental Health (NIMH) press office after reading a press release that said that NIMH was going to conduct a trial to see if chelation therapy improved the behaviour of autistic children. [...] [...] Two weeks ago I wrote to Karin Lee at the National Institute for Mental Health (NIMH) press office after reading a press release that said that NIMH was going to conduct a trial to see if chelation therapy improved the behaviour of autistic children. [...]

]]> By: Mike Stanton http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1754 Mike Stanton Tue, 19 Sep 2006 21:33:08 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1754 Thank's Do'C. Those are good questions. My first thought was "How does candida feed on mercury? Shouldn't the mercury kill the candida? Helen Dr Klinghardt has not published anything regarding mercury or autism in the scientific or medical literature. I would not trust a doctor who is trying out his theories on children before presenting them for peer review. Thank’s Do’C.
Those are good questions. My first thought was “How does candida feed on mercury? Shouldn’t the mercury kill the candida?

Helen
Dr Klinghardt has not published anything regarding mercury or autism in the scientific or medical literature. I would not trust a doctor who is trying out his theories on children before presenting them for peer review.

]]> By: Do'C http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1753 Do'C Tue, 19 Sep 2006 20:49:51 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1753 <em>A few points about mercury toxicity causing autism. mercury is not just present in vaccines but also in fish, the air we breathe and oftne can be the result of mercury filling in the mother passing across the placenta. It does not necessarily come up in blodd tests or hair analysis but can be locked in to the fatty tissues of the brain and spinal column where it disrupts neuronal activity.</em> Which of these points are about mercury toxicity causing autism? How much mercury causes autism, and by what mechanism? <em>Where these depositions of mercury occur will dictate the spikes of the autistic rofile. </em> Can you provide explanatory scientific research for this? <em>The mercury can also reside deep withint the bone marrow where it continues to contaminate the blood. From my own personal experience I believe this scenario to be true because blood tests only revealed low levels of mercury in my son and I had been told that mercury was not an issue.</em> You can believe whatever you want. How does it cause autism? <em>Yet, I saw progress when I started to follow the protocols advocated by Drs Klinghardt and Ray. Removing heavy metals from the brain is a lengthy and precarious process an dmust be done with the utmost care, if not it can actualy make the situation worse. </em> Which chelator(s) acutally effectively remove mercury from the brain? Do you have any scientific evidence that removing metals (assuming it can be done), leads to cognitive improvement? <em>This is because candida feeds on mercury and must also be excreted safely from the body preparing all the organs initially for the task. Therefore before one can begin to excrete mercury the gut kidneys spleen and liver must be well prepared otherwise the mercury is reabsorbed back into the system.</em> How much is (re)methylated, and what amount causes autism? A few points about mercury toxicity causing autism. mercury is not just present in vaccines but also in fish, the air we breathe and oftne can be the result of mercury filling in the mother passing across the placenta. It does not necessarily come up in blodd tests or hair analysis but can be locked in to the fatty tissues of the brain and spinal column where it disrupts neuronal activity.

Which of these points are about mercury toxicity causing autism?
How much mercury causes autism, and by what mechanism?

Where these depositions of mercury occur will dictate the spikes of the autistic rofile.

Can you provide explanatory scientific research for this?

The mercury can also reside deep withint the bone marrow where it continues to contaminate the blood. From my own personal experience I believe this scenario to be true because blood tests only revealed low levels of mercury in my son and I had been told that mercury was not an issue.

You can believe whatever you want. How does it cause autism?

Yet, I saw progress when I started to follow the protocols advocated by Drs Klinghardt and Ray. Removing heavy metals from the brain is a lengthy and precarious process an dmust be done with the utmost care, if not it can actualy make the situation worse.

Which chelator(s) acutally effectively remove mercury from the brain?
Do you have any scientific evidence that removing metals (assuming it can be done), leads to cognitive improvement?

This is because candida feeds on mercury and must also be excreted safely from the body preparing all the organs initially for the task. Therefore before one can begin to excrete mercury the gut kidneys spleen and liver must be well prepared otherwise the mercury is reabsorbed back into the system.

How much is (re)methylated, and what amount causes autism?

]]> By: jim http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1741 jim Tue, 19 Sep 2006 15:12:38 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1741 I too was intitially shocked when the NIH said they would be studying the effects of chelation. I figured they had lost their minds and caved in to political pressure. The more I thought about it, however; the more i wondered if this wasnt a stroke of genius. Once the governement proves that chelation is a fraud can I sue my DAN doctor. I always believed one should be careful what one wishes for. In the case of the DAN doctors will this give us the evidence to finally abolish this crap? I too was intitially shocked when the NIH said they would be studying the effects of chelation. I figured they had lost their minds and caved in to political pressure. The more I thought about it, however; the more i wondered if this wasnt a stroke of genius. Once the governement proves that chelation is a fraud can I sue my DAN doctor. I always believed one should be careful what one wishes for. In the case of the DAN doctors will this give us the evidence to finally abolish this crap?

]]> By: Helen http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1735 Helen Tue, 19 Sep 2006 08:20:23 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1735 A few points about mercury toxicity causing autism. mercury is not just present in vaccines but also in fish, the air we breathe and oftne can be the result of mercury filling in the mother passing across the placenta. It does not necessarily come up in blodd tests or hair analysis but can be locked in to the fatty tissues of the brain and spinal column where it disrupts neuronal activity. Where these depositions of mercury occur will dictate the spikes of the autistic rofile. The mercury can also reside deep withint the bone marrow where it continues to contaminate the blood. From my own personal experience I believe this scenario to be true because blood tests only revealed low levels of mercury in my son and I had been told that mercury was not an issue. Yet, I saw progress when I started to follow the protocols advocated by Drs Klinghardt and Ray. Removing heavy metals from the brain is a lengthy and precarious process an dmust be done with the utmost care, if not it can actualy make the situation worse. This is because candida feeds on mercury and must also be excreted safely from the body preparing all the organs initially for the task. Therefore before one can begin to excrete mercury the gut kidneys spleen and liver must be well prepared otherwise the mercury is reabsorbed back into the system. A few points about mercury toxicity causing autism. mercury is not just present in vaccines but also in fish, the air we breathe and oftne can be the result of mercury filling in the mother passing across the placenta. It does not necessarily come up in blodd tests or hair analysis but can be locked in to the fatty tissues of the brain and spinal column where it disrupts neuronal activity. Where these depositions of mercury occur will dictate the spikes of the autistic rofile. The mercury can also reside deep withint the bone marrow where it continues to contaminate the blood. From my own personal experience I believe this scenario to be true because blood tests only revealed low levels of mercury in my son and I had been told that mercury was not an issue. Yet, I saw progress when I started to follow the protocols advocated by Drs Klinghardt and Ray. Removing heavy metals from the brain is a lengthy and precarious process an dmust be done with the utmost care, if not it can actualy make the situation worse. This is because candida feeds on mercury and must also be excreted safely from the body preparing all the organs initially for the task. Therefore before one can begin to excrete mercury the gut kidneys spleen and liver must be well prepared otherwise the mercury is reabsorbed back into the system.

]]> By: Lisa http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1697 Lisa Mon, 18 Sep 2006 03:27:50 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1697 Regarding the chelation study, I think NIMH's position would be that even if they think it's a bad idea (and I have to suppose they do), parents *are* doing it, so there's a need to generate some hard evidence to be able to say for sure. Even so, it's kind of horrifying to see hogwash getting traction at this level. Also, chelation will start getting billed as "a treatment studied by the National Institutes of Health," even after the results are in and they show, presumably, that chelation is BS. Regarding the chelation study, I think NIMH’s position would be that even if they think it’s a bad idea (and I have to suppose they do), parents *are* doing it, so there’s a need to generate some hard evidence to be able to say for sure.

Even so, it’s kind of horrifying to see hogwash getting traction at this level. Also, chelation will start getting billed as “a treatment studied by the National Institutes of Health,” even after the results are in and they show, presumably, that chelation is BS.

]]> By: María Luján http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1696 María Luján Mon, 18 Sep 2006 03:26:36 +0000 http://mikestanton.wordpress.com/2006/09/17/who-and-what-drives-autism-research/#comment-1696 Hi LB I consider that every parent is a voice, every family is a world and every child with autism is diferent. Therefore, there are as many views of autism as autistic children. I understand your position. I consider that I can point my disagreement-even strongly- with the tone/tactics/conclussions of parents/organisation overstating the role of thimerosal and vaccines, without being offensive. And I consider also that we, parents , must be extremely aware of potentially dangerous/ineffective/unsafe approaches. BUT this is totally different to accept the other position: that Heavy metals/vaccines have not been/ have or will have nothing to do with ASD. Looking at this post, I consider that the role of immune/autoimmune problems can be extremely important in a subgroup of children with autism and it is certain that , if enough clues about medical conditions like multiple sclerosis-or related- are present, under careful consideration between parents and doctors a lumbar puncture I imagine can be of help as confirmatory, always than benefit overcome the risks specially for a child ( I generally am very conservative in my ideas about tests in children). What I was talking about is in the test as a screening without other clues pointing to a medical condition that requires the test as the only way to confirm. My son was tested for some kind of LK and also performed a sleep EEG of 7 hours. All normal. We also screened , after a lot of search of an open mind doctor, for autoimmunity-but not CFS. You can find in www.kevinleitch.com/forum several citations on autoimmune research in autism, but perhaps you know them. Unfortunately in my experience, many times I talk related to my own research.- derived from personal experience- is considered such as I am the representative of someone else or defending some particular extreme, against other- and I have never done/ do/ will do this. BTW, I consider that acceptation and love are out of question in my case, therefore asking questions about ASD does not imply lack of. I do think that there is a need of a change in the approach that consider that we, parents of Autistic children, can have only two different extreme ideas, because many of us do not agree with them- in extreme views- and feel not represented by neither, too. Hi LB
I consider that every parent is a voice, every family is a world and every child with autism is diferent. Therefore, there are as many views of autism as autistic children.
I understand your position. I consider that I can point my disagreement-even strongly- with the tone/tactics/conclussions of parents/organisation overstating the role of thimerosal and vaccines, without being offensive. And I consider also that we, parents , must be extremely aware of potentially dangerous/ineffective/unsafe approaches. BUT this is totally different to accept the other position: that Heavy metals/vaccines have not been/ have or will have nothing to do with ASD.
Looking at this post, I consider that the role of immune/autoimmune problems can be extremely important in a subgroup of children with autism and it is certain that , if enough clues about medical conditions like multiple sclerosis-or related- are present, under careful consideration between parents and doctors a lumbar puncture I imagine can be of help as confirmatory, always than benefit overcome the risks specially for a child ( I generally am very conservative in my ideas about tests in children). What I was talking about is in the test as a screening without other clues pointing to a medical condition that requires the test as the only way to confirm.

My son was tested for some kind of LK and also performed a sleep EEG of 7 hours. All normal. We also screened , after a lot of search of an open mind doctor, for autoimmunity-but not CFS.
You can find in http://www.kevinleitch.com/forum several citations on autoimmune research in autism, but perhaps you know them.
Unfortunately in my experience, many times I talk related to my own research.- derived from personal experience- is considered such as I am the representative of someone else or defending some particular extreme, against other- and I have never done/ do/ will do this. BTW, I consider that acceptation and love are out of question in my case, therefore asking questions about ASD does not imply lack of.

I do think that there is a need of a change in the approach that consider that we, parents of Autistic children, can have only two different extreme ideas, because many of us do not agree with them- in extreme views- and feel not represented by neither, too.

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