Comments on: Autism Acceptance or Genetic Testing?

By: Autism Blog - Putting a price on life « Left Brain/Right Brain

Autism Blog - Putting a price on life « Left Brain/Right Brain — Mon, 20 Apr 2009 18:26:13 +0000

[...] I wrote about this three years ago and I invoked the spectre of the Nazis. My friend Dinah Murray commented on Mike Stantons [...]

By: Alex

Alex — Mon, 23 Apr 2007 00:15:43 +0000

Thank You

By: Autism Blog Web Design Blog: » Stupid Eugenics

Autism Blog Web Design Blog: » Stupid Eugenics — Sat, 05 Aug 2006 09:09:33 +0000

[...] Dinah Murray [...]

By: laurentius

laurentius — Fri, 23 Jun 2006 16:49:49 +0000

Indeed I am growing rather sick of the way the NAS makes appointments to exterior bodies from staff, and NT staff at that, I have made my feeling known to both board and Council about this, they are passing up significant areas of expertise, but it is of course a “control” thing, staff are under contract.

By: laurentius

laurentius — Fri, 23 Jun 2006 16:46:45 +0000

With regard to the daily mail article, I registered a protest with the Human Fertilisation & Embryology Authority.

The reply I got was to the effect that no application for a licence has been made to discard Male Embryos for families with an autistic member.

Somebody somewhere is not telling the truth about this, so has the hospital applied or not, and if so for what has it applied?

Well I shall have to wait till Monday to confront the hospital about this.

Pity the NAS is being spineless over the issue, they could save me the bother.

By: mike stanton

mike stanton — Wed, 21 Jun 2006 09:38:48 +0000

I applied as an individual with experience of genetic conditions both as a parent and a teacher. The NAS generally communicates with bodies like the HGC via professional staff

By: dinah

dinah — Wed, 21 Jun 2006 06:41:56 +0000

very good news Mike that you are on their consultative panel – they didn’t tell me about you when I inquired.
Were you on the panel as a representative of the NAS?

By: Mike Stanton

Mike Stanton — Tue, 20 Jun 2006 20:34:11 +0000

I am a member of the HGC consultatative panel and have contacted them about this.

By: dinah

dinah — Tue, 20 Jun 2006 13:27:42 +0000

ps I suspect Peter Hobson would be aghast at the idea that his thoughts could promote a eugenics agenda; but he’d be mistaken.

By: dinah

dinah — Tue, 20 Jun 2006 07:49:12 +0000

btw the Human Genetics Commission, headed by Helena Kennedy was set up to look at ethical and other issues around genetic screening etc. It has consulted with many bodies including Mencap, but they have had no input from the NAS nor any other organisation concerned with autism. Surely with its involvement with huge well funded research projects into the genetics of autism the NAS should be represented.